Stress of Caregiving

Posted by Debbie on Wednesday, April 22, 2020 - 03:20

My husband has been diagnosed with Frontotemporal dementia and he is only 58 years old. He has lost any sense of empathy, acts out inappropriately (sexually), feels no affection for me at all and I feel utterly lost. I have a Masters degree in social work and trained in geriatrics. I was drawn to Alzheimer's disease and other dementias so, I went to as many wonderful trainings as I could; Teepa Snow (at has become my hero. She is the foremost expert on dementia. That said, I have had many clients with Alheimer's and other dementias, but I could leave at the end of the day and come home. Having to care for my husband is the most challenging thing I have had to do, especially knowing what lies ahead, his life span shortened considerably, losing his memory, losing the ability to comprehend and communicate to name a few things. I count on God's grace each day, as well as the strength He gives me, to get through my days. Some days are especially emotionally draining and I spend a good portion of the day in tears, but we will get through this. We have been married for 30 years, many of them not so good, but my wedding vows said for better or for worse, in sickness and in health... until death do us part. I take my vows seriously and I will take the best care of him as I am able, until I can't, and try very hard to make good memories in what time we have left together. I hope this helps someone today.